Help Me Overcome Lyme Disease!

Hello! Welcome to M Goes Bananas.

My name is Emily, but I prefer to be called by my nickname “M”

Why am I going bananas? Good question!

After years of unexplained, painful health issues, I was diagnosed with late stage Lyme Disease, Epstein-Barr virus (aka mono), and two co-infections, Babesia and Bartonella.  I have many ailments that persist in my body on a constant basis. Some of which make me feel like I’m “going bananas.”

The word “bananas” has multiple meanings for me. Let’s break down why I’m “going bananas” to a few definitions.

  • Bananas: a delicious fruit found in the tropics. One I’ve become allergic to and can no longer eat without getting a negative reaction. Sad, I know. I lost a healthy, easy way of getting potassium, and it’s my favorite fruit flavored bread. Say that ten times fast!
  • Bananas: losing ones mind. That’s exactly what Lyme does to your brain. The Lyme community calls it brain fog. I call it….actually, I forgot what I’ve called it. Annoying is what it is! Short term and long-term memory is affected. I have difficulty holding a conversation without getting distracted. Oh look a squirrel! I can’t have a normal conversation without sounding like Yoda. Trying to sound articulate is non-existent. Thank goodness for grammar and spell check!
  • Bananas: to act crazy in a playful manner. I’d love to act crazy. I’ve always felt held back by some invisible force. Lyme Disease!

I hope this satisfies your curiosity about me going bananas. If not, refer to the second explanation. Oh look a squirrel!

A little bit more about me. I am single, athletic, work too hard, like long walks on the beach, and an occasional good beer.

Okay seriously. I am single, I do love a good beer, I work retail which has been a battle in its own while living with Lyme, and I do like the outdoors, especially hiking and camping. I am also very creative and love DIY things. But I’m getting off track.

I never got the classic bulls eye rash, so pinpointing when I got bit by the tick is difficult. Based upon my health history, I can narrow it down to when I was about 11 or 12 years old, so I’ve been dealing with this for over 20 years.

When I was a kid, before Lyme, I loved to run. And I was good at it. I didn’t know it then, but due to Lyme, my joints have always bothered me and prevented me from enjoying a nice run. I miss it dearly.

Along with the joint pain, I have been plagued with many food allergies, yes from Lyme. I miss eating citrus, melons, kiwi, walnuts, bananas, and my favorite avocados. Living in California avocados are on every menu, taunting me. We even sell an avocado dog toy at work! I used to share a whole avocado with my mother every now and then. It was something we both enjoyed and considered it one of the few things we had in common.

Another thing I miss is my brain. I have always had trouble concentrating, speaking clearly, memory…and other things that I’ve forgotten. Those things most people take for granted. I just want my brain to work normally! I can’t remember the last time I felt smart. Sometimes I feel like the Scarecrow, “If I only had a brain.”

Finally, the thing I will love to have back is energy. I work full-time, and when I have a day off, I sleep. Not just a few extra hours, I sleep all day, and I’m still tired. I literally have no stamina. I want energy to explore and do things regular 30 something year olds like me do. I am afflicted by many aliments that prevent me from living life to its fullest.

Neuropathy is a recent, painful, and unforgiving symptom. Usually, it’s a side effect from diabetes, or cancer treatments, but because of Lyme, my nerves are either over or under active. There is no medication to help because they compromise the medications I take for Lyme.

As my life with late stage Lyme continues, and if I’m not able to get my immune system to work properly, more symptoms can appear and could possibly bring one that will end my life. Yes, in addition to daily pain and mental symptoms, complications from Lyme can cause death.

I would love to have energy like most people in their 30’s, no joint pain, no food allergies, and my mind…its hard to imagine what that would be like, but I want it. I want to have a life without chronic illness. I am tired of hiding my pain and acting like I am healthy when I am not.

My sister-in-law also had late stage Lyme disease and Babesia. She recently tried a unique and promising treatment. She had thymus and autologous  stem cell therapy in Germany. It seems extreme, but when you live with almost constant pain and symptoms for as long as we have you become open to trying treatments that aren’t common in the U.S. So far, she’s feeling better than she has in several years.

Thankfully, the process is not invasive and relatively simple. Thymus and stem cell therapy have been treatments used in Germany for years. They have been used to treat various illnesses like MS, lupus, and cancer.

Unfortunately, all treatments for Lyme here in the U.S. or abroad are expensive and controversial. There has been very little research on how to effectively help people fully recover. Many people stay on antibiotics or herbal remedies for years with little improvement.  Most protocols are similar to chemotherapy and often involve medications administered via IV.

The biggest challenge keeping me from getting the treatment in Germany is the cost. The average cost is $25,000.

Yikes, that’s a lot of moo-lah!

Even if I continue treatment with my Lyme doctor here in the U.S., my treatment is very expensive. My health insurance doesn’t cover any doctor visits, lab tests, and only a small percentage of my prescriptions are covered. In addition, I need to take several expensive supplements, and herbal remedies.

I currently spend about $12,000 a year on my treatment. The average treatment time for late stage Lyme, and co-infections is three years. I’ve been in treatment for one year, so that means I’ll be spending at least $24,000 over the next two years.

I know what you’re thinking. “Why don’t you do stem cell treatment here in the U.S.?”

In the U.S., autologous stem cell therapy is very new, and at this time, it’s not offered by any clinic here. The thymus and stem cell clinic in Germany is experienced and well-respected.

Please help me live a normal, healthy life again.

Help me raise money to get the proper treatment for late stage Lyme.

I want to once again frolic through the poppies towards the Emerald City… (wait I think that’s in a movie somewhere.) It sounds happy and fun. That’s all I want to be, happy.

I promise if I get the treatment and become symptom free, I will frolic through the poppies.

Thank you for listening to my story.

Sincerely,

“M”


 

Hello! It’s Jen, M’s sister in law here….

Please donate to M’s Lyme disease treatment fund via PayPal by clicking the Donate button below.

Donate Button with Credit Cards

Unlike Go Fund Me, there is no fee for M, or you to use PayPal. Go Fund Me takes 8% from every donation.

Feel free to leave comments or encouraging words for M!

M will periodically update this page, her updates will be posted in the top right of the page.

THANK YOU for helping M!

 

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8 thoughts on “Help Me Overcome Lyme Disease!

  1. Dear M:
    I think you are very courageous, and you have always seemed to me to be an incredibly vital person. I’m sorry you are dealing with this condition, but I know your indomitable spirit will persevere, and you will get through this and enjoy your life to the fullest.
    I care about you, and wish you all the best with this endeavor. Please accept the token I am sending as a symbol of that caring. I wish it could be more. Perhaps more donations will be possible later.
    I wish you and your sister in law all the best.
    With love,
    David

    Liked by 1 person

  2. M
    So sorry ur going through this pain and constantly be sick.
    Neuropathy hurts and is no fun in itself. 9 yrs later still suffering more than ever.. There are treatments that can help relieve.. Cannibus creams do wonders .. Think about it and probably won’t interfere with ur Lyme meds. Let’s take a walk in the beach soon..
    Hugs and positive vibes daily
    Love ya Meryl

    Liked by 1 person

  3. Dear M,
    I don’t know you, however I did speak with your sister in law a couple of days ago and she told me about your situation. I also have many of the same symptoms and I too am trying to figure out if there is a way to get the stem cell treatment. After reading your story above, it seems that you have a wonderful sense of humor and I trust that one day, you will be back to your healthy self. I hope you will be able to raise the money that you need in order to get good treatment and I hope this donation helps your cause.
    Wishing you lots of love, joy, and awesome health!
    Karmjit

    Liked by 1 person

  4. I just wanted to reach out and thank you for your post. I too have Lyme , Bart and Babs and have been treating for a year! Our mutual friend Molly B shared your post and I thought I’d see if you’ve heard about the lyme challenge that just started?

    Here’s the basics. I hope you’ll join in!
    Grab a lime! Post a pic or video of yourself biting a lime to your favorite social media site like Facebook or Twitter and tag 3 friends to join our challenge #lymediseasechallenge. You can find more information at lymediseasechallenge.org

    Like

    • Hi there! Molly’s such a great friend. So sorry that you are going through this too. It’s a catch 22. Your glad you’re not in this alone, but your sad that someone is in the same boat.
      I was just told about the challenge the other day. I think my family and I are going to try to do a funny video of it.
      You’re probably already part of a Lyme support group, but if you need anything, even if it’s to vent, my email is posted.

      Like

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